What Is Cerebral Palsy?

What Is Cerebral Palsy?

Meet Jessica. This Is What She Wants You to Know about Cerebral Palsy

The Cerebral Palsy Toolkit: From Diagnosis to Understanding

Cerebral Palsy in Under 25s: Assessment and Management

Cerebral Palsy Road Map: What to Expect as Your Child Grows. 

(The road map covers all types of CP and all GMFCS levels. It is organized into four age groups from birth to age 18. It covers 10 areas of interest including mobility, musculoskeletal, and interventions)

"A Parent’s Perspective: Welcome to Holland"

Creating Possibilities for Cerebral Palsy

The ICF for Parents (P-ICF)

(Scroll down the page for a very useful video series on the ICF)

The F Words of Disability

My Favourite Words

These Six F-Words Won’t Fill up Your Swear Jar: What Do the F-Words Mean to Youth with Impairments?

GMFM Score Sheet

Motor Development Milestones

CDC’s Developmental Milestones

Does My Child Have Physical Developmental Delays?

(Healthy Children is a website of the American Academy of Pediatrics)

Types of Cerebral Palsy

Gross Motor Function Classification System Expanded and Revised

GMFCS Video

Insights from Experts: Motor Classification

GMFCS Family Report Questionnaire.

(Scroll down to find separate sheets for each of the four age groups: 2–4, 4–6, 6–12, and 12–18)

Manual Ability Classification System for Children with Cerebral Palsy 4–18 Years

Bimanual Fine Motor Function

Mini-Manual Ability Classification System for Children with Cerebral Palsy 1–4 Years of Age

Communication Function Classification System (CFCS)

Viking Speech Scale (VSS)

Eating and Drinking Ability Classification System (EDACS)

Visual Function Classification System (VFCS)

On Track Measures

The Brain

Birth to 36 Months: Boys

2 to 20 Years: Boys

Birth to 36 Months: Girls

2 to 20 Years: Girls

New Growth Charts

(These charts are “for height, weight, and BMI for boys and girls with cerebral palsy, stratified by GMFCS”)

ROM Measurement Procedures: Knee Flexion and Extension

Clonus

Hip Surveillance in Cerebral Palsy

Family-Centred Service

Guidelines for Determining Frequency of Therapy

Early, Accurate Diagnosis and Early Intervention in Cerebral Palsy

JAMA Pediatrics, 171

Early Intervention for Children Aged 0 to 2 Years with or at High Risk of Cerebral Palsy: International Clinical Practice Guideline Based on Systematic Reviews

JAMA Pediatrics, 171

State of the evidence traffic lights 2019: Systematic review of interventions for preventing and treating children with cerebral palsy

Curr Neurol Neurosci Rep, 20, 1-21

Rehabilitation Therapies Episodes of Care in Childhood and Adolescence

Cerebral palsy and dystonia

Intensity of Service in an Outpatient Setting for Children With Chronic Conditions

Fit for Life

Fit for Sport

Health-Related Fitness for Children and Adults with CP

Protecting Your Joints

Work Simplification Techniques

Ergonomics in the Home

Spasticity Treatment Options for Cerebral Palsy

Spasticity in Under 19s: Management

All about your Single-Event Multilevel Surgery SEMLS

Why Gait Patterns Matter? Learn More About Unilateral Gait/Hemiplegia

Parenting Program

Current State of Stem Cell Treatments for Cerebral Palsy: A Guide for Patients, Families, and Service Providers

"If I Knew Then What I Know Now…" Tips for Parents of Children and Youth with Cerebral Palsy, from Parents

The Doctor Switch: Shane’s Story

Letting Go (at Least a Little Bit)

Students with Mild Cerebral Palsy in the Classroom: Information and Guidelines for Teachers

(pages 70-78)

Got Transition 

(aims to help youth and young adults move from pediatric to adult health care.)

Lifespan Journal Digest

Osteoporosis in cerebral palsy

BMI

Cerebral Palsy in Adults

Amy and Bonnie the mobility dog

What Is Research?

Cochrane produces systematic reviews, published in the Cochrane Library, to help people make informed health decisions

Levels of Evidence: Introductory Document

Glossary

Family engagement in research

Cerebral Palsy: A Complete Guide for Caregiving

Freeman Miller and Steven Bachrach and The Cerebral Palsy Center at Nemours/Alfred I. duPont Hospital for Children 

Cerebral Palsy: From Diagnosis to Adult Life

Peter Rosenbaum and Lewis Rosenbloom

Cerebral Palsy: Science and Clinical Practice (Clinics in Developmental Medicine)

Edited by Bernard Dan, margaret Mayston, Nigel Paneth, and Lewis Rosenbloom

Physiotherapy and Occupational Therapy for People with Cerebral Palsy

Edited by Karen Dodd, Christine Imms, and Nicholas Taylor

Developmental Disability and Aging

Edited by Gregory O'Brien and Lewis Rosenbloom

Finnie’s Handling the Young Child with Cerebral Palsy at Home

Edited by Eva Bower

Consider This

The AACPDM is an academy of health professionals “dedicated to providing multidisciplinary scientific education and promoting excellence in research and services for the benefit of people with and at risk for CP and other childhood-onset disabilities”

This US national sports organization supports people with physical disabilities

CanChild is a nonprofit research and educational centre at McMaster University in Ontario, Canada. It offers resources for both professionals and families on a variety of developmental conditions

The CDC is the leading national public health institute in the United States

The Cerebral Palsy Alliance is an Australian treatment and research center

An educational resource for families of children with CP

• The Dystonia in Cerebral Palsy Toolkit

• Wellbeing Guide for Parents and Caregivers

• The Adult Cerebral Palsy Toolkit

Its mission statement is “leading research, innovation, and collaboration that changes lives for people with cerebral palsy—today.” Its resources include a video library with a collection of videos on different aspects of CP that is well worth exploring. It also publishes useful fact sheets

CP Research Network is a group of doctors, therapists, and patient advocates “collaborating to improve treatments and outcomes for people with CP.” The network hosts MyCP for the CP community to participate in research and discussions

This UK national sports organization supports people with CP and other physical disabilities

Childhood Disability LINK is a Canadian organization “Linking Information and New Knowledge” on childhood disability to service providers and families

This journal publishes many papers relevant to spastic diplegia. Papers are freely available online one year after publication. The journal also publishes plain-language summaries to make the research more accessible

Everyday Health produces content related to health and wellness. It includes a section on CP

Kids Brain Health is a Canadian network of researchers and health professionals dedicated to helping children with neurodisabilities and their families

The Peter Harrison Centre for Disability Sport is an internationally renowned disability sport research center located at Loughborough University in the United Kingdom

Scope is a disability equality charity in England and Wales

This group aims to “develop best practice in monitoring trends in CP and to disseminate knowledge to health professionals, policy makers, patients, and families, to provide information for resource planning, and raise standards of care for patients with CP"

UCP is a US organization that "educates, advocates, and provides support services to ensure a life without limits for people with a spectrum of disabilities"

UP is a UK-based adult CP organization. Its “movement is about positively making the changes in ourselves, and in society, so that we can live our best lives"