Creating greater understanding of complex medical conditions

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Craniosynostosis

Ruth J. Barta, Cheryl Tveit, and Heather Comstock

Craniosynostosis is a condition where the bones of an infant’s skull fuse together too early. In most cases, surgery in the first year of life will effectively correct it and the child can go on to expect a typical life. For a minority, craniosynostosis is part of a syndrome, which is a lifelong condition. This practical guide explains how craniosynostosis develops and the evidence-based, best-practice treatments. It also includes the lived experience of families.

The writing of Craniosynostosis was led by Dr. Ruth Barta, MD, Craniofacial and Pediatric Plastic Surgeon at Gillette Children’s, a world-renowned center of excellence for the treatment of brain, bone, and movement conditions. Craniosynostosis is part of the Gillette Children’s Healthcare Series, a series of books for families who are looking for clear, comprehensive information. Health care professionals, educators, students, and extended family members will also benefit from reading Craniosynostosis.

Authors

Ruth J. Barta, MD

Cheryl Tveit, RN, MSN, CNML

Heather Comstock, parent

Editors

Lily Collison MA, MSc

Elizabeth Boyer, PhD

Martin Lacey, MD

Tom F. Novacheck MD

For bulk purchases, please email: admin@mackeith.co.uk

All proceeds from the books in this series at Gillette Children’s go to research.

What people are saying

“One of the most comprehensive and educational books on craniosynostosis.” 

WALEED GIBREEL, MD
Pediatric Plastic and Craniofacial Surgeon, Mayo Clinic, Rochester, Minnesota

“The book I wish I had when my son was diagnosed with sagittal craniosynostosis.” 

ELAINE L. KINSELLA
Parent; Chartered Psychologist and Associate Professor in Psychology, University of Limerick, Ireland

“A remarkably comprehensive review of all things related to craniosynostosis.” 

CHRISTOPHER R. FORREST, MD
Medical Director, SickKids Craniofacial Program, Toronto; Professor, Division of Plastic, Reconstructive and Aesthetic Surgery, University of Toronto

"I found the book very educational and easy to read. I think it will help many new families beginning the craniosynostosis journey. Very well written!"

SHELBY DAVIDSON
Parent of child with sagittal craniosynostosis, Seattle, Washington

“Receiving a diagnosis of craniosynostosis can be scary; it’s a condition most parents have never heard of. This book is the perfect starting point for anyone looking to understand the basics and to help them navigate the treatment options available as best practices in craniofacial surgery continue to evolve.”

JEFFREY FEARON
Director Craniofacial Center, Dallas, Texas; President Emeritus of the American Society of Craniofacial Surgeons and the Texas Society of Plastic Surgeons

“This book provides an insightful exploration into the complexities of craniosynostosis, a condition where the bones in an infant’s skull fuse prematurely. Through a blend of personal narrative and scientific research, it offers a comprehensive understanding of the condition’s causes, symptoms, and treatment options. What sets this book apart is its compassionate portrayal of families affected by craniosynostosis. By sharing their stories, the authors shed light on the emotional challenges they face, from diagnosis to treatment decisions. Additionally, the book delves into the latest medical advancements, offering hope to families navigating this complex problem. It serves as an informative resource for those seeking knowledge about the condition; its real strength lies in its ability to inspire empathy and solidarity among readers.”

EMMA CORDES
Assistant Professor, Indiana University Department of Surgery, Division of Plastic Surgery; Director of Cleft and Craniofacial Program; Director of Global Surgery Program

“Craniosynostosis will be a valuable resource, especially for parents who are just learning of their child’s diagnosis. The detailed explanation of the condition, the pronunciation of words, and the definitions are all beneficial to the reader in providing information all in one place—my favorite aspect. Incorporating personal stories gives a sense of reality, as well as comfort and reassurance often sought by those affected by craniosynostosis. I firmly believe this book will help educate and bring further awareness to the condition.”

LINDSAY WALKER
Parent of a child with nonsyndromic craniosynostosis, West Virginia

“As parents of a child with metopic CS we are certain this book will be a valuable resource to all. It provides both tactical information and human experiences through all phases of CS, from recognition to diagnosis, surgery and recovery, research, and beyond. We are so grateful for the continued research and education Gillette Children’s is leading.”

STACY AND ANDREW STUECK
Parents of child with metopic CS, Minnesota

Gillette Children’s Healthcare Press

seeks to deepen understanding of complex medical conditions that are treated at Gillette Children’s. 

Email Lina Abdennabi, Press Coordinator:

linaiabdennabi@gillettechildrens.com
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