Creating greater understanding of complex medical conditions

Section 1.1

Section 1.2

None

Section 1.3

Section 1.4

Section 1.5

Section 1.6

Section 2.1

None

Section 2.2

  • Cerebral Palsy Foundation (2016) The Brain. (video)

Section 2.3

Note: Depending on age, height is referred to as either “length” or “stature” in these resources.

Section 2.4

Section 2.5

None

Section 2.6

  • Med School Made Easy (2013) Clonus. (video)

Section 2.7

Section 2.8

None

Section 2.9

None

Section 3.1

None

Section 3.2

Section 3.3

Section 3.4

Section 3.5

None

Section 3.6

Section 3.7

Section 3.8

None

Section 3.9

Section 3.10

Section 4.1

None

Section 4.2

Section 4.3

None

Section 4.4

Many of the web links in section 3.4 remain relevant for adults with CP and are not repeated here. The following may also be helpful:

Chapter 5

Chapter 6

Further reading: websites

The following are websites which I found useful (listed in alphabetical order). Many others were included throughout the book and are not repeated here.

  • American Academy for Cerebral Palsy and Developmental Medicine (AACPDM)
    The AACPDM is an academy of health professionals “dedicated to providing multidisciplinary scientific education and promoting excellence in research and services for the benefit of people with and at risk for CP and other childhood-onset disabilities.”
  • BlazeSports America
    This US national sports organization supports people with physical disabilities.
  • CanChild Center for Childhood Disability
    CanChild is a nonprofit research and educational center at McMaster University in Ontario, Canada. It offers resources for both professionals and families on a variety of developmental conditions.
  • Centers for Disease Control and Prevention (CDC)
    The CDC is the leading national public health institute in the United States.
  • Cerebral Palsy Alliance
    The Cerebral Palsy Alliance is an Australian treatment and research center.
  • Cerebral Palsy Daily Living
    An educational resource for families of children with CP.
  • Cerebral Palsy Foundation
    Its mission statement is “leading research, innovation, and collaboration that changes lives for people with cerebral palsy—today.” Its resources include a video library with a collection of videos on different aspects of CP that is well worth exploring. It also publishes useful fact sheets.
  • Cerebral Palsy Research Network (CP Research Network)
    CP Research Network is a group of doctors, therapists, and patient advocates “collaborating to improve treatments and outcomes for people with CP.”
    The network hosts MyCP for the CP community to participate in research and discussions.
  • Cerebral Palsy Sport
    This UK national sports organization supports people with CP and other physical disabilities.
  • Childhood Disability LINK
    Childhood Disability LINK is a Canadian organization “Linking Information and New Knowledge” on childhood disability to service providers and families.
  • CP Now
    CP Now is a US organization whose mission is “to optimize the lifelong health, wellness and inclusion of people with cerebral palsy and their families.”
  • Developmental Medicine & Child Neurology
    This journal publishes many papers relevant to spastic diplegia. Papers are freely available online one year after publication.
    The journal also publishes plain-language summaries to make the research more accessible.
  • Everyday Health: Cerebral Palsy
    Everyday Health produces content related to health and wellness. It includes a section on CP.
  • Kids Brain Health
    Kids Brain Health is a Canadian network of researchers and health professionals dedicated to helping children with neurodisabilities and their families.
  • Peter Harrison Centre for Disability Sport
    The Peter Harrison Centre for Disability Sport is an internationally renowned disability sport research center located at Loughborough University in the United Kingdom.
  • Scope UK
    Scope is a disability equality charity in England and Wales.
  • Surveillance of CP in Europe (SCPE)
    This group aims to “develop best practice in monitoring trends in CP and to disseminate knowledge to health professionals, policy makers, patients, and families, to provide information for resource planning, and raise standards of care for patients with CP.”
  • United Cerebral Palsy (UCP)
    UCP is a US organization that “educates, advocates, and provides support services to ensure a life without limits for people with a spectrum of disabilities.”

Gillette Children’s Healthcare Press

seeks to deepen understanding of complex medical conditions that are treated at Gillette Children’s. 

Email Lina Abdennabi, Press Coordinator:

linaiabdennabi@gillettechildrens.com
Gillette Childrens Healthcare Press Contact Form