- Tommy Collison (2012) Consider This (PDF)
- Books
- Spastic Diplegia
- Resources — Spastic Diplegia
Section 1.1
- Cerebral Palsy Alliance (2014) What Is Cerebral Palsy? (video)
- Cerebral Palsy Foundation (2016) What Is Cerebral Palsy? (video)
- Ontario Brain Institute (2017) Meet Jessica. This Is What She Wants You to Know about Cerebral Palsy. (video)
- CP Now (2015) The Cerebral Palsy Toolkit: From Diagnosis to Understanding. (pdf)
- UK National Institute for Health and Care Excellence (NICE) (2017) Cerebral Palsy in Under 25s: Assessment and Management. (online)
- Gillette Children’s Specialty Healthcare (2022) Cerebral Palsy Road Map: What to Expect as Your Child Grows. (pdf) (The road map covers all types of CP and all GMFCS levels. It is organized into four age groups from birth to age 18. It covers 10 areas of interest including mobility, musculoskeletal, and interventions.)
Section 1.2
None
Section 1.3
- Cerebral Palsy Alliance (2018) Prechtl’s General Movements Assessment. (pdf)
- Emily Perl Kingsley (1987) “A Parent’s Perspective: Welcome to Holland.” (online)
- CP-NET (2015) Creating Possibilities for Cerebral Palsy. (video)
Section 1.4
- CanChild (2019) The ICF for Parents (P-ICF). (online) (Scroll down the page for a very useful video series on the ICF.)
- Cerebral Palsy Foundation (2016) The F Words of Disability. (video)
- CP-NET (2018) My Favourite Words. (video)
- CP-NET (2015) These Six F-Words Won’t Fill up Your Swear Jar: What Do the F-Words Mean to Youth with Impairments? (video)
Section 1.5
- CanChild (2013) GMFM Score Sheet. (pdf)
- WHO (2019) Motor Development Milestones. (online)
- CDC (2019) CDC’s Developmental Milestones. (online)
- Healthy Children (2019) Does My Child Have Physical Developmental Delays? (online) (Healthy Children is a website of the American Academy of Pediatrics.)
Section 1.6
- Cerebral Palsy Alliance (2015) Types of Cerebral Palsy. (video)
- CanChild (2007) Gross Motor Function Classification System Expanded and Revised. (pdf)
- CanChild (2018) GMFCS Video. (video)
- Cerebral Palsy Foundation (n.d.) Insights from Experts: Motor Classification. (video)
- CanChild (2011) GMFCS Family Report Questionnaire. (pdf) (Scroll down to find separate sheets for each of the four age groups: 2–4, 4–6, 6–12, and 12–18.)
- MACS (2010) Manual Ability Classification System for Children with Cerebral Palsy 4–18 Years. (pdf)
- MACS (2013) Mini-Manual Ability Classification System for Children with Cerebral Palsy 1–4 Years of Age. (pdf)
- CFCS (2011) Communication Function Classification System (CFCS). [pdf]
Section 2.1
None
Section 2.2
Cerebral Palsy Foundation (2016) The Brain. (video)
Section 2.3
Note: Depending on age, height is referred to as either “length” or “stature” in these resources.
- CDC (2001) Birth to 36 Months: Boys. (pdf)
- CDC (2000) 2 to 20 Years: Boys. (pdf)
- CDC (2001) Birth to 36 Months: Girls. (pdf)
- CDC (2000) 2 to 20 Years: Girls. (pdf)
- Life Expectancy Project (2011) New Growth Charts. (online)
Section 2.4
- CDC (2016) ROM Measurement Procedures: Knee Flexion and Extension. (video)
Section 2.5
None
Section 2.6
- Med School Made Easy (2013) Clonus. (video)
Section 2.7
- American Academy for Cerebral Palsy and Developmental Medicine (AACPDM) (2017) Hip Surveillance in Cerebral Palsy. (online)
Section 2.8
None
Section 2.9
None
Section 3.1
None
Section 3.2
- CanChild (2019) Family-Centered Service. (online)
- Gillette Children’s Specialty Healthcare (2016) Cerebral Palsy Road Map: What to Expect as Your Child Grows. (pdf)
Section 3.3
- American Academy for Cerebral Palsy and Developmental Medicine (AACPDM) (n.d.) Executive Function in Individuals with Cerebral Palsy, Spina Bifida, and Brain Injury. (pdf)
- Cincinnati Children’s (2008) Guidelines for Determining Frequency of Therapy. (pdf)
- Gillette Children’s Specialty Healthcare (2016) Rehabilitation Therapies Episodes of Care in Childhood and Adolescence. (pdf)
- American Physical Therapy Association (2012) Intensity of Service in an Outpatient Setting for Children With Chronic Conditions. (pdf)
Section 3.4
- Loughborough University Peter Harrison Centre for Disability Sport (n.d.) Fit for Life. (pdf)
- Loughborough University Peter Harrison Centre for Disability Sport (n.d.) Fit for Sport. (pdf)
- American Academy for Cerebral Palsy and Developmental Medicine (AACPDM) (n.d.) We Can All PLAY: Participation in Adapted Sports and Recreation for Children and Youth with Disabilities. (pdf)
- American Academy for Cerebral Palsy and Developmental Medicine (AACPDM) (n.d.) Walking Changes and Associated Implications across the Lifespan for Individuals with Cerebral Palsy. (pdf)
- American Academy for Cerebral Palsy and Developmental Medicine (AACPDM) (n.d.) Fatigue in Individuals with Cerebral Palsy. (pdf)
- American College of Sports Medicine (2016) Health-Related Fitness for Children and Adults with CP. (pdf)
- The National Center on Health, Physical Activity and Disability (NCHPAD) (2019) (online) (NCHPAD is a public health practice and resource center for people with disabilities. It has a selection of informative videos.
- Gillette Children’s Specialty Healthcare (2019) Protecting Your Joints. [online]
- Gillette Children’s Specialty Healthcare (2019) Work Simplification Techniques. [online]
- Gillette Children’s Specialty Healthcare (2019) Ergonomics in the Home. [online]
Section 3.5
None
Section 3.6
- Gillette Children’s Specialty Healthcare (2014) Spasticity Treatment Options for Cerebral Palsy. (video)
- UK National Institute for Health and Care Excellence (NICE) (2016) Spasticity in Under 19s: Management. (online)
Section 3.7
- Gillette Children’s Specialty Healthcare (2018) All about Your Single-Event Multilevel Surgery (SEMLS). (online)
- Gillette Children’s Specialty Healthcare (2014) Gait and Motion Analysis for Treatment Planning and Outcomes Assessment. (pdf)
Section 3.8
None
Section 3.9
- Beldick S, Fehlings MG (2017) Current State of Stem Cell Treatments for Cerebral Palsy: A Guide for Patients, Families, and Service Providers. (online)
Section 3.10
- CanChild (2009) “If I Knew Then What I Know Now…” Tips for Parents of Children and Youth with Cerebral Palsy, from Parents. (pdf)
- CanChild (2013) The Doctor Switch: Shane’s Story. (video)
- Cerebral Palsy Foundation (2016) Letting Go (at Least a Little Bit). (video)
- CP-NET (2015) These Six F-Words Won’t Fill up Your Swear Jar: What Do the F-Words Mean to Youth with Impairments? (video)
- Tindal (2017) “Students with Mild Cerebral Palsy in the Classroom: Information and Guidelines for Teachers.” (pdf) (Temporarily unavailable online, will update when it again becomes available).
Section 4.1
None
Section 4.2
- Centers for Disease Control and Prevention (CDC) (2015) Assessing Your Weight. (online)
Section 4.3
None
Section 4.4
Many of the web links in section 3.4 remain relevant for adults with CP and are not repeated here. The following may also be helpful:
- American Academy for Cerebral Palsy and Developmental Medicine (AACPDM) (n.d.) Why Do Adults with Cerebral Palsy Need a Primary Care Provider (PCP)? (pdf)
- American Academy for Cerebral Palsy and Developmental Medicine (AACPDM) (n.d.) Care of Adults with Cerebral Palsy. (pdf)
- American Academy for Cerebral Palsy and Developmental Medicine (AACPDM) (n.d.) Pain in Adults with Cerebral Palsy. (pdf)
- Attitude (n.d) Amy and Bonnie the mobility dog. (video)
- UK National Institute for Health and Care Excellence (NICE) (2019) Cerebral Palsy in Adults. (online)
- American Academy for Cerebral Palsy and Developmental Medicine (AACPDM) (n.d.) Physical Fitness and Exercise for Adults with Cerebral Palsy. (pdf)
Chapter 5
Chapter 6
- CanChild (2019) What Is Research? (online)
- Cochrane (2019) (online)
- Oxford Center for Evidence-Based Medicine (Oxford CEBM) (2011) Levels of Evidence: Introductory Document. (online)
- Oxford CEBM (2019) Glossary. (online)
Further reading: websites
The following are websites which I found useful (listed in alphabetical order). Many others were included throughout the book and are not repeated here.
- American Academy for Cerebral Palsy and Developmental Medicine (AACPDM)
The AACPDM is an academy of health professionals “dedicated to providing multidisciplinary scientific education and promoting excellence in research and services for the benefit of people with and at risk for CP and other childhood-onset disabilities.” - BlazeSports America
This US national sports organization supports people with physical disabilities. - CanChild Center for Childhood Disability
CanChild is a nonprofit research and educational center at McMaster University in Ontario, Canada. It offers resources for both professionals and families on a variety of developmental conditions. - Centers for Disease Control and Prevention (CDC)
The CDC is the leading national public health institute in the United States. - Cerebral Palsy Alliance
The Cerebral Palsy Alliance is an Australian treatment and research center. - Cerebral Palsy Daily Living
An educational resource for families of children with CP. - Cerebral Palsy Foundation
Its mission statement is “leading research, innovation, and collaboration that changes lives for people with cerebral palsy—today.” Its resources include a video library with a collection of videos on different aspects of CP that is well worth exploring. It also publishes useful fact sheets. - Cerebral Palsy Research Network (CP Research Network)
CP Research Network is a group of doctors, therapists, and patient advocates “collaborating to improve treatments and outcomes for people with CP.”
The network hosts MyCP for the CP community to participate in research and discussions. - Cerebral Palsy Sport
This UK national sports organization supports people with CP and other physical disabilities. - Childhood Disability LINK
Childhood Disability LINK is a Canadian organization “Linking Information and New Knowledge” on childhood disability to service providers and families. - CP Now
CP Now is a US organization whose mission is “to optimize the lifelong health, wellness and inclusion of people with cerebral palsy and their families.” - Developmental Medicine & Child Neurology
This journal publishes many papers relevant to spastic diplegia. Papers are freely available online one year after publication.
The journal also publishes plain-language summaries to make the research more accessible. - Everyday Health: Cerebral Palsy
Everyday Health produces content related to health and wellness. It includes a section on CP. - Kids Brain Health
Kids Brain Health is a Canadian network of researchers and health professionals dedicated to helping children with neurodisabilities and their families. - Peter Harrison Centre for Disability Sport
The Peter Harrison Centre for Disability Sport is an internationally renowned disability sport research center located at Loughborough University in the United Kingdom. - Scope UK
Scope is a disability equality charity in England and Wales. - Surveillance of CP in Europe (SCPE)
This group aims to “develop best practice in monitoring trends in CP and to disseminate knowledge to health professionals, policy makers, patients, and families, to provide information for resource planning, and raise standards of care for patients with CP.” - United Cerebral Palsy (UCP)
UCP is a US organization that “educates, advocates, and provides support services to ensure a life without limits for people with a spectrum of disabilities.”