“As relevant to doctors and health professionals as it is to people with cerebral palsy and their families.”
SPASTIC HEMIPLEGIA
Unilateral Cerebral Palsy
Spastic hemiplegia is a very common subtype of cerebral palsy (CP), and CP itself is the most common cause of childhood-onset physical disability. An estimated 17 million people worldwide have CP. Spastic hemiplegia is also known as unilateral spastic CP or, simply, unilateral CP.
Spastic hemiplegia affects the upper and lower limbs of one side of the body. The upper limb is usually more affected than the lower limb. This practical guide addresses spastic hemiplegia across the lifespan and the evidence-based, best-practice treatments. It also includes the lived experience of families. Spastic Hemiplegia is part of the Gillette Children’s Healthcare Series, a series of books for families who are looking for clear, comprehensive information. Health care professionals, researchers, educators, students, and extended family members will also benefit from reading Spastic Hemiplegia.
For bulk purchases, please email: admin@mackeith.co.uk
All proceeds from the books in this series at Gillette Children’s go to research.
Author and Editors
PRAISE FOR
SPASTIC HEMIPLEGIA
“In a world where it is so hard for parents of children with cerebral palsy to navigate conversations in health care systems, this book gets my highest recommendation: it is useful for parents. In particular, the explanations of concepts that they will hear doctors and therapists refer to, the importance of mental health considerations, and the perspective of other parents make this a uniquely practical resource. An unexpected and wonderful addition is the stories from adults with cerebral palsy—unvarnished and honest—which shed light on their experiences while also offering hope for a positive future for our children and patients.”
NATHALIE MAITRE,
Professor of Pediatrics in Neonatology, Neonatologist at Children’s, and Director of Early Development and Cerebral Palsy Research, Emory University School of Medicine; Mother of son with hemiplegia, US
“How refreshing to read a book that is as relevant to doctors and health professionals as it is to people with cerebral palsy and their families. Learning from real-life experiences like those of Ally and her family, shared with openness and vulnerability, make the book compelling. Their story, interwoven throughout the text, provides valuable insights, and the photographs add depth. This book strikes a balance between being informative and respectful toward health care professionals and people with lived experience, written in language that can facilitate open communication to achieve the best outcome for the child and their family. There is a refreshing emphasis on shared decisionmaking and multidisciplinary care, as well as family- and person-centered care. A highlight is the information on transition to adulthood and living as an adult with cerebral palsy. It felt like a genuine conversation, addressing the person with CP directly: informative, respectful, and heartwarming. This book just wants to do the right thing by families. It is a generous resource of other sources of knowledge and help. I recommend this book to both health professionals and to families living with cerebral palsy.”
NADIA BADAWI
CP Alliance Chair of Cerebral Palsy Research, University of Sydney; Medical Director and Co-Head, Grace Centre for Newborn Intensive Care, The Children’s Hospital at Westmead, Australia
“Wow! This book is the most amazing and comprehensive source of information available for persons with unilateral CP and their families I have ever seen, and it should be required reading for any professionals who care for them. I was frankly astounded by the breadth of information here. Not only did I learn several things I had not known before, but I also am not able to think of anything the authors may have missed. Perhaps even more notable is that the information is understandable and digestible to all audiences and presented in a very caring and respectful manner that does not minimize the inherent challenges of having CP while also highlighting the limitless possibilities. The story of Ally and all the voices of those with CP and their families add tremendously to the content and the overall tone of the book. The lifespan perspective is to be applauded as well.”
DIANE DAMIANO,
Senior Investigator and Chief, Neurorehabilitation and Biomechanics Research Section, National Institutes of Health; Past-President Clinical Gait and Movement Analysis Society; Past President American Academy of Cerebral Palsy and Developmental Medicine, US