Spastic Diplegia—Bilateral Cerebral Palsy | Gillette Children’s Healthcare Press

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Spastic Diplegia—Bilateral Cerebral Palsy

An empowering and evidence-based guide for living a full life with spastic diplegia—bilateral cerebral palsy.

Author

  • Lily Collison MA, MSc

Editors

  • Jean Stout PT, MS
  • Amy Schulz, PT, NCS
  • Candice Johnson, OTD, OTR/L
  • Tom F. Novacheck, MD

Gillette Children’s

About the Book

The book addresses how spastic diplegia develops over the lifespan and explains the evidence-based, best-practice treatments. It empowers parents of young children, and adolescents and adults with the condition, to become better advocates and co–decision makers in the medical process. The focus of this optimistic, yet practical book is on maximizing activity and participation—living life to its fullest. Health care professionals, educators, students, and extended family members will also benefit from reading this book. Indeed, while this book focuses on spastic diplegia, much of what is addressed also applies to other forms of spastic CP at GMFCS levels I to III, namely hemiplegia and quadriplegia.

Reviews

“This book provides the answers we have all been looking for … the perfect balance of science and practical knowledge …With a resource of this quality, the future is bright for all of us.”

DR. LINDA A HALLMAN — Parent of teenager with spastic diplegia, Director of Orthodontics, MedStar Washington Hospital Center and Children’s National Medical Center, Washington DC, USA

“This co-developed parent–professional book on the focused topic of spastic diplegia is a must-read for professionals, parents, and the individual with cerebral palsy (CP). The range of the book is “real-world focused” with the latest accurate literature incorporated … It serves a unique educational niche … I am recommending it already!”

DR. DEBORAH GAEBLER-SPIRA — Director Cerebral Palsy Program, Shirley Ryan AbilityLab, Professor of Pediatrics and Physical Medicine and Rehabilitation, Northwestern Feinberg School of Medicine, Past President of the American Academy for Cerebral Palsy and Developmental Medicine, Illinois, USA

“This book is excellent, insightful, and educational: it will open minds and touch hearts. It is very clear and easy to read. As an adult with spastic diplegia, I have learned many new things about my condition from reading it.”

SAMANTHA MARIE LADEMANN — Adult with spastic diplegia, Minnesota, USA

“This book provides a comprehensive overview of all aspects of living with bilateral spastic CP …The combination of evidence-based information and personal experience ensures that this book is an engaging and thought-provoking read, which families and health professionals would benefit from owning.”

DR. JENNIFER RYAN — Research Lecturer, Royal College of Surgeons in Ireland (RCSI), Dublin, Ireland

“I met Lily Collison for the first time in mid-September 2001, when I was lecturing at a cerebral palsy seminar held at the Central Remedial Clinic in Dublin, Ireland. Lily later brought Tommy to Gillette … for treatment. That began a doctor-patient relationship that lasted up until my retirement in 2008, and a friendship that has lasted to this present day. Lily wrote a book for parents, much as I did for orthopedic surgeons back in 1991. This book, Spastic Diplegia—Bilateral Cerebral Palsy … is a must-read for parents of children with spastic diplegia, and if its guiding principles are followed, it will do much to ensure that their particular child reaches maturity with an optimal outcome.”

DR. JAMES R. GAGE — Medical Director Emeritus, Gillette Children’s Specialty Healthcare, Past President, American Academy for Cerebral Palsy and Developmental Medicine, Professor of Orthopedics Emeritus, University of Minnesota, USA

ABOUT THE AUTHOR/EDITORS

Lily Collison, MA, MSc, is the parent of an adult with spastic diplegia. In addition to raising her son, she studied the condition extensively including completing a research study in cerebral palsy for a Master of Science degree in 2008. She has now written Spastic Diplegia—Bilateral Cerebral Palsy in conjunction with senior medical staff at Gillette Children’s Specialty Healthcare. Lily has three adult sons, and lives in Ireland with her husband. She runs every day and enjoys fitness, food, reading, and travel.

Jean Stout, PT, MS, Research Physical Therapist at the James R. Gage Center for Gait and Motion Analysis, Gillette Children’s Specialty Healthcare, St. Paul, Minnesota, USA.

Amy Schulz, PT, NCS, Physical Therapist and Clinical Educator at Gillette Children’s Specialty Healthcare.

Candice Johnson, OTD, OTR/L, Rehabilitation Therapies Administrative Supervisor–CORE (Clinical Outcomes, Research, and Education) at Gillette Children’s Specialty Healthcare and Gillette Phalen Clinic.

Tom F. Novacheck, MD, Associate Medical Director at Gillette Children’s Specialty Healthcare, Professor of Orthopedics at the University of Minnesota, and Vice-President, American Academy for Cerebral Palsy and Developmental Medicine.

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